AETHERIA
unified medical data


Currently, citizens' medical data can be found in multiple formats, making access and efficient use difficult. In addition, although it is a right recognised by the European Union, citizens face technological barriers that make it difficult for them to be the custodians of their own health data, preventing them from sharing it securely and in accordance with European regulations (EHDS, GDPR, Data Act…) with other medical centres (hospitals, clinics, laboratories), research centres for clinical studies or sectoral Data Spaces.

Currently, citizens' medical data can be found in multiple formats, making access and efficient use difficult. In addition, although it is a right recognised by the European Union, citizens face technological barriers that make it difficult for them to be the custodians of their own health data, preventing them from sharing it securely and in accordance with European regulations (EHDS, GDPR, Data Act…) with other medical centres (hospitals, clinics, laboratories), research centres for clinical studies or sectoral Data Spaces.

Challenges
Patients' medical records are often fragmented across hospitals, laboratories and other healthcare providers, each using their own data management systems, which are mostly incompatible with one another. This makes it difficult for citizens to access their medical information comprehensively, which in turn can affect healthcare delivery and clinical decision-making. For example, a doctor may not have access to test results carried out in another centre, leading to duplicated diagnostics or treatments and unnecessarily increasing costs.
The heterogeneity of formats in which data are stored (medical records may be on paper, PDF, databases or even proprietary formats) not only creates technical barriers to consolidating information but also limits its use in secondary activities such as medical research or population data analysis. Without adequate standardisation, it is complex to perform comparative analyses or identify useful patterns for developing new therapies or improving healthcare strategies.
The lack of interoperability prevents citizens from exercising full control over their health data. Although European legislation is advancing in recognising patients' right to access their medical information, in practice obtaining a complete medical history can require cumbersome procedures and significant time. This situation highlights the need to adopt technological solutions that enable secure, efficient and accessible data integration.
Solution
A platform that enables any citizen to transform their medical data—regardless of format, physical or digital—into HL7 FHIR using advanced AI techniques, store it in a secure digital wallet through the use of Verifiable Credentials and Digital Wallets aligned with eIDAS2 and European digital identity initiatives, share it verifiably and privately with hospitals, research centres and Health Data Spaces through integration with connectors, and perform intelligent analysis of clinical data in HL7 using advanced AI, facilitating medical decision-making.
Related news
Participating entities
Funding entity
Ministerio para la Transformación Digital y de la Función Pública
Subcontractor
TECNALIA